menu

PatientsLikeMe and Genentech Research Collaboration

Disclosed Personal Data Health

The Data

PatientsLikeMe is a global online patient network. Through this data collaborative with Genentech, they aim to develop innovative ways of researching patients’ real-world experiences with disease and treatment. The agreement is the first broad research collaboration between PatientsLikeMe and a pharmaceutical company and provides PatientsLikeMe the opportunity to expand its patient network in oncology.

How the data was shared

Over the course of the five-year agreement, Genentech will tap into PatientsLikeMe’s Global Network Access, a service directly targeted at pharmaceutical companies that "delivers a range of data, research and tools." The service includes: -- "Access to PatientsLikeMe’s network to enable cross-sectional research and broader discovery of patient insights. -- Enhanced customized research services and capabilities. -- Focused research projects to evaluate and develop new medical evidence, measures and standards of health. -- Access to PatientsLikeMe’s clinical trial awareness tool, which allows patients to learn about clinical trials."

Purpose of Data Shared

The data collaborative seeks to provide new insight into disease and treatments informed by the real-world experiences of patients. It also provides PatientsLikeMe the opportunity to expand its patient network in oncology.

Region: North America

includes kosovo