Lilly, T1D Exchange Diabetes Research Collaboration

Disclosed Personal Data Health

The Data

The multi-element Lilly and TD1 Exchange collaborative is a patient-centric registry of more than 26,000 people with T1D, a clinic network comprised of more than 70 clinics across the U.S., a sample repository that stores patient biosamples, and Glu, a patient and caregiver online community for T1D.

How the data was shared

Though it is unclear where the collaborative now stands, the initial premise was to analyze T1D exchange data and develop a survey for health care providers from the clinic network and members of Glu, and online patient and caregiver platform. Following the survey, further surveys were to be undertaken and shared with patients to collect data. The data is to be shared publicly once analysis is complete, for the benefit of both the Type 1 diabetes and researcher communities.

Purpose of Data Shared

The Exchange acts as a convener of clinicians, patients and caregivers working to improve the health outcomes of patients with Type 1 Diabetes. By connecting these people to one another and to the patient community at large, T1D Exchange aims to be the translational engine that enables the entire T1D ecosystem to collaborate via a Clinic Network, Clinic Registry, Sample Repository, and the online patient/caregiver community, Glu.

Region: North America

includes kosovo